Please pray for Daddy’s procedure on Thursday Jun 27. The angiogram in May was incomplete bc the landscape of Daddy’s blood flow is more complicated than anticipated, the catheter caused damage, and so they were unable to look at the 2nd aneurysm. Therefore, the goal of the procedure on Thursday is not diagnostic – best case scenario = Dr. C will place stents to address both brain aneurysms. He will be under general anesthesia and will stay at least one night in the hospital. Please pray that both aneurysms will be addressed successfully, and Daddy will recover quickly.
Thank you for your prayers and support over all these years. The Lord is faithful and we are very grateful to be a part of the body of Christ.
#strokesurvivor #brainaneurysm 📸: Ernie last week – the Lord blesses us with a very special time together.
Wearing pink (breast cancer) and teal (ovarian cancer) in support of precious friends who have faced really tough stuff lately. We have a ton of childhood history. Wearing these rings helps me remember to pray for them. || Strength and Honor are at the heart of womanhood at its best. At the heart of being human regardless of gender, actually. But I love that the scriptures emphasize these values when describing ideal womanhood in Proverbs 31 #avmsurvivor #strokesurvivor #learninghowtolive #lifeismysport #shreddedgrace #breastcancer #ovariancancer
Prayer Req: After I saw my Neuro a month ago, my Mental Health Pros required immediate action, too. I’m grateful for a unified Team determined to help me. 😑 I’m paying the price physically and mentally for everything I’ve done since March. I knew there would be consequences but I had the present ability to do stuff and the right people in place to coach me through risk mitigation and do damage control later. Thank God that a month ago I chose a course of physical in home treatment that is really helping my back. Also, Sister Maria (David) gave me a therapeutic exercise regimen. Randy lectured me on intentionality of movement. I BELIEVE in visualization and rebuilding brain pathways by concentrating on firing certain muscles. David’s exercises relieved the pain, but I thought I was stuck with this weird knee grinding. I didn’t quite believe Randy, so I said, “Hold up. Are you telling me that I can influence the function of all that stuff in my knee by just THINKING about it?!?!” He said, if my diagnosis is correct, yes. This was accompanied by an anatomical explanation that I did not understand, but I nodded solemnly to convey agreement with his teachings. Granted, I have to remember a ton of other stuff about alignment that @fyz taught me. But it WORKED 😳. 🙌🔥 Please pray for (1) PAIN RELIEF as my knee, hips, and entire body continue to improve.
(2) WISDOM for future treatment decisions
(3) STAMINA – I have lost a ton due to improper breathing and inability to run since November. It has taken a huge toll. I have not been at church since March – except once. That one time I was sick afterwards. I have to build up again – I will start alternative cardio in July. This is how my mobility was won- starting with 50
strides on the elliptical. I built to 1000 and eventually learned to run. My quality of life is highly impacted by cardiovascular health. I can walk gently, but although I love walking w Daddy, it aggravates everything wrong with my gait. But PTL, we had a very nice walk this morning. We are on target for his next procedure – Jun 27. Thank you for your prayers.
P.s. I forgot to explain – I said this on Fb and Instagram but not here. Sister Maria = Trainer David. It’s like the Sound of Music – how do you solve a problem like Maria? How do you catch a cloud and pin it down? But the real reason I call him that is bc we all know Julie Andrews’ destiny lies beyond the convent. 🤣🤣🤣
#avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace
I’m trying to get Daddy to use a cane. See the big 💗? He was unmoved 😑. He is more than able, PTL, in fact he is SO ABLE , he wishes to eschew an assistive device entirely. In the “Dad” pic, the cane is hanging on the hemi walker he dismissed airily as “useless.” I explained that PTB will have something to say about this. I was raised in an environment where progression is closely monitored and you must obtain permission to do things. In early days I was forbidden to walk and talk simultaneously and got in trouble with my OT for kitchen cruising without asking Andy Frankenstein. It continues today: Sister Maria explained, you must EARN the right to explore the next level of movement. “If you show me more stability in ABC, I will allow you to XYZ.” 😑. I will let PTB settle it on Thursday. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace #brainaneurysm #disabledpeopleproblems
FYI, the irony of this situation is not lost on me. 🤣🤣😑😑💗💗
Daddy just got permission to use a single point cane in the house! 🙌🔥. In my world, there were 3 additional steps between a P walker and a SP cane. But Daddy is doing well despite all that weird blood flow stuff. We had a GREAT time at PT and OT just now. They are so kind there – this was the last place I Rehabbed before David got me kicked out 😑. Today, I was busy checking in so Daddy had to walk into his session alone. “Take good care of Daddy, OB!” I called over my shoulder. We got a ton of homework in OT. I gotta go find the Theraputty that Randy (yes, Randy, my ATC) gave me. I’m blue, Daddy is yellow. || T: these dexterity exercises are probably very mentally exhausting. Me: We’re okay with that – we are Tans. || Thank the Lord, he got a lot of exercise today, and we both did a lot of laughing. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace #brainaneurysm
Daddy saw the neurosurgeon today. He is recovering very well from the angiogram that did not go as planned, however, his blood flow is more flawed than anticipated. Against this problematic backdrop, there are two aneurysms that still need to be “secured.” The next procedure will be June 27, during which Daddy will be under general anesthesia. Please pray he continues to heal well in the next month and that the procedure will go well on the 27th. Dr. C hopes that it will not be diagnostic like last time, but that she will be able to treat both aneurysms right then. Thank you always for your love and prayers.
AMBIGUITY 😑. I don’t like it. I prefer to formulate the game plan, assign roles & responsibilities, and explain strategy via PowerPoint in order to boost the chance of success. But the Lord often uses ambiguity to make me take Him at His word. He told Israel to leave the bondage of Egypt and camp out in front of the Red Sea. They murmured bc they knew Pharaoh was coming for them. Then God told Moses to tell them to get up and walk in the direction of freedom…..which happened to lead directly into the aforementioned Red Sea. 😑😑😑 the Lord did not explain that He was going to part the waters, He just did it. 😳Can you imagine being the guy in front?!?!This is my theory: I don’t like Ambiguity, but w/o faith it is impossible to please Him. So while I wait on guidance for my specific situation, I keep busy with this (non exhaustive and not prioritized) list of action items that are inarguably God’s will. This list is not a breezy checklist – it’s a tall order to be approached aggressively and with enthusiasm like how David literally RAN to meet Goliath and the Philistine army. But although it’s scary, God promises to go before me. It’s totally like epic battle scenes in the movies. The King ALWAYS goes first. || p.s. Happy Mother’s Day 💗💗💗 #shreddedgrace
Daddy got home yesterday! He and Mommy are very tired bc they kept checking vitals throughout the night, but PTL, they were good. Thank the Lord for kind and capable nurses. And thank you always for your prayers. 😊💗
The doctors agreed amongst themselves to cancel the CT bc Daddy is doing well and his pulse is strong. Please pray Daddy continues to do well and for good rest for him and Mommy tonight. (She’s staying at the hospital). #strokesurvivor #brainaneurysm #lifeismysport #learninghowtolive #shreddedgrace
During Daddy’s angiogram this morning an artery was “injured/dissected.” They are doing a CT scan now to assess damage and see if he needs surgery. He will at least stay overnight. They only got an image of one side – they still need the other. Please pray for Daddy’s healing and strength for Mommy. She’s at the hospital with Ernie.
Update: I stress baked. Grain Free Monk Fruit. Daddy is resting. No CT scan yet, but the docs say he’s doing okay. 💗💗💗