Thank you!

Thank you for praying for me!! My friend from elementary school took me to the test and Mommy collected me. It was harrowing only bc the reactions they induce and measure are fraught with significance for me. But the lady testing me was FANTASTIC. And now I get to see Trainer D and tell him all about it! Thanks so much for your prayers πŸ’—. Mommy made these cookies last year. I forgot to photograph this year 🀣😊. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Pls Pray: VNG tomorrow morning πŸ˜‘πŸ‘‚πŸ½πŸ§ 

Hi! Please pray for my VNG test tomorrow morning. It’s supposed to she’s light on my inner ear and brain. I have been feeling poorly, and have been poked and prodded a lot lately, which gives rise to inconvenient memories in addition to being physically uncomfortable. I have had more trouble with navigating space and have gotten a few bumps. Re the memories, don’t worry – I took my Trauma Treatment to the next level in 2019 with EMDR (at the behest of my people πŸ˜‘πŸ€£) and the situation is being worked. My mental health pros are coaching me on how to handle all these developments healthily. Please pray specifically that (1) they get good data (2) getting good data doesn’t agitate my system even more. Thanks! #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Charlie Brown Teacher Thing πŸ¦»

Uncool hearing changes this past 1.5 weeks πŸ˜‘. My Neuro ordered more testing next week and I had a 1.5 hour imaging session on Friday. I’m a pro at imaging, but this one bothered me a bit, but I was well looked after by the staff and especially D, the lovely driver the Lord gave me in March β€˜19 when Daddy got sick. I need more assistance now bc of all the sensory interference. C took me to the AuD on Wednesday and made sure I was ok in that APPALLING parking lot πŸ˜‘. I was sitting in the sound booth wearing two devices my AuD knows I abhor bc they hurt the hole in my head πŸ˜‘ and I was like, SERIOUSLY?!?! We talked about this. And she was hilarious, Like, It’ll just be 2 min !! And she shut the door on me really fast 🀣🀣🀣. She was intent on getting good data and knew my skull is just fine despite the hole and I’m grateful, I just fuss for fun. At least that’s what I told the MRI guy πŸ˜‘. My hearing changed. It’s changed like 3x in the last 11 days. C, we might have to go back, please πŸ’—πŸ˜‘. But this is actually a PRAISE: For several days I had this extremely loud Charlie Brown Teacher thing going on when hearing speech (yours or my own) and extra discordant tones when listening to music or playing piano. This has settled into hearing loss plus very loud additional interference (white noise), but I prefer this bc I could not distinguish between the discordancy in my head from a minor chord. Given that I cannot use my eyes to read music, the loss of reliable audible feedback was daunting. I will take this more stable loss with gratitude – please thank God that i don’t have to adjust to that appalling discordancy and pray it stays that way. And pray for good leads in rehabbing my functionality, and the other stuff I’m getting checked out.

Dizziness, Nausea and depth perception issues are hindering or completely shutting down some ADL’s. πŸ’—πŸ’—πŸ’— #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

More Stuff to Learn πŸ”₯ – just gotta dig in….

Although it’s not perfect, the stent in Daddy’s R carotid is deemed “acceptable” so we don’t have to talk about it for another 6 mo.!! Thanks, Dr. C. πŸ™‚ Priority now is getting him cleared for Gall Bladder Removal. I have had my own health developments, including more Hearing Problems. I’m getting the full work up and seeing ALL my peeps. Not only is Team Tanimal highly skilled, they are hilarious and great people as individuals. THANK YOU to my friends who are driving me in this busy season. I will be getting more images and tests. I’m going back to Occupational Therapy. Although the hearing and sensory distress may prove to be permanent my functionality can be rehabbed. I’m actually very hopeful about this – it’s like what I told Matt Hankey – we will ALWAYS be learning. There’s a ton of information on how to deal with another level of deficits that I have not explored yet. Thank God He taught me to identify giftedness and recruit it in my favor before I got sick. I have never been a subject matter expert. But I know how to find them! Also, these challenges make it more difficult for me to navigate the world, so I’ve lost confidence, stamina, and mobility in the past year. Summary: PRAISE: Daddy is ok and we both have wonderful people to help us, starting with MOMMY xxooxoxo PRAYER: 1. Daddy will get his GB removed 2. My testing and imaging will yield helpful results 3. The Lord’s provision (time, people, insurance coverage, transportation) for the treatment and logistical care I need, and that He will restore and grow my abilities.#avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Every Step is a Choice – MATT!! πŸ”₯

Matt took 4 consecutive steps yesterday. πŸ˜³πŸ™ŒπŸ”₯πŸ˜’πŸ’—πŸ˜³πŸ˜³πŸ˜³πŸ˜‘. I feel NOTHING about this situation except to say that it is an honor to watch it unfold. He can also now use his upper body to push himself up from lying flat to sitting, AND can transfer unassisted. These are HUGE quality of life gains and incredible physical accomplishments. I wrote in my first book, β€œEvery step is a choice.” 8 yrs later, this is still true. You must bring heart, grit, and a ton of effort to the table to make movement happen. But the choice is harder in the beginning. You’re on your way, Matt. Congratulations. Keep choosing to put one foot in front of the other. Please Pray (1) for Matt’s mobility and the Logistics of Life (2) Thank God for the people who choose to help us. Pray for Diahanne!! 😊 to Help Matt Walk again, go to and click on the Magic Wand. Link in Bio. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace @hopeforhankey

Merry Christmas 2019

Look at this mobility!! πŸ€£πŸ€£πŸ’—πŸ’— Can you see my reflection? My R hip flexor is better, PTL. Thank you so much for praying – even though the L is obviously still torn and it’s been kinda dicey with pain, nausea and dizziness, it’s SUCH a relief for the R to be okay. Plus, seeing my family, especially my precious nieces and nephews is a wonderful distraction and I honestly think I’m getting better, anyway. Mommy Daddy are glad to see the family, too. There’s a lot of cookie action going on 🀣🀣🀣. Thank you for praying for us πŸ’—. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

No more stairs? πŸ˜‘

FYI I am DEEPLY INSULTED by the stairs thing. I still sleep upstairs but use stairs narrow enough to accommodate weight bearing on the rails on both sides, so let’s assume this is ok. πŸ™Œ

I strained my R hip flexor πŸ˜‘. There is now a Coach R- sized thumbprint on it πŸ˜‘. My L hip is known to be torn. 2/2 is not a great statistic and I’m trying to rest. Also, D scrutinized me on the stairs, was appalled 😳 (even though I was really concentrating on my form like R said) and decreed that I should be using the escalator or elevator from now on. πŸ˜‘. Before I could walk A2 made sure I could navigate a standard flight of stairs during inpatient, but my long term mobility is still being worked on. I am thankful to have people with great ideas for my treatment and their eyes on the long term prize. I’m also thankful that Mommy Daddy and I can be nice and snug in the house together on these rainy days. You know what? Although the extra dizziness is still throwing me off balance the nausea is much better. I am continuing my Trauma Treatment with EMDR and it really addressed Psych-related nausea, which is the lion’s share of the problem even though I know my cerebellum is calibrating, too. Kindly pray that my hips will feel better, I will be able to eat appropriately to support healthful activity (I stopped eating food like a normal person in 2014 due to stress. This is why Smurfette is my RD) and for strength and grace for Mommy Daddy as we make his next set of appointments. #strokesurvivor #avmsurvivor #lifeismysport #learninghowtolive #shreddedgrace


Thank you SO MUCH for praying. The Event was lovely this morning. Thank you for your prayers. It was great to see everyone and JLSS was my wingman. I spoke on Rahab’s scarlet β€œline” – TIQVAH, translated elsewhere as hope or expectation. I’m still dizzy but the nausea is drastically reduced since receiving some treatment on Monday. πŸ™ŒπŸ”₯ I am grateful for this step in the right direction. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Washing Machine πŸ˜‘

I am really enjoying prepping for my Dec 4 event, but request prayer re health: Uncool nausea and dizziness – motion sickness due to walking and level changes (eg stairs, sit to stand). Thank God this is not constant, but when it presents it’s very embarrassing – a lot of gagging and hugging the wall as in early Recovery. It’s not severe enough for me to medicate it yet, but I’m not thrilled that it stems from using my legs as opposed to riding in a car or on a roller coaster. I never explained to David & Randy how severe the original cerebellum adjustment was when I woke up. It was like being in the washing machine for the spin cycle – I could not even tolerate having a pillow – the only safe place was flat in bed. This is why learning to sit was so horrible, and although my current symptoms are a fraction of the severity, they give rise to many inconvenient memories. The good news is that I am on the 3rd week of Sister Maria’s cardio build up program and I did not gag in front of Coach R during squats (I think bc he requires a good breathing pattern) and he read the tea leaves and did not make me do lateral step overs. But the thing I’m most thankful for, even as life has gotten more demanding, is that I can leave all of my concerns in nail-pierced hands as I do what I know is right – He looks after my interests for me. Please note that I am wearing my claddagh in celebration of our Irish heritage. @erkep @abjorli #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Hoya Saxa ⚽️

Watching ⚽️ helps me neurologically, no joke. I spent 3+ years running in the AlterG while watching ⚽️ on TV. It’s a ton of eye work, and when combined with motion it’s fantastic. Early PT taught me to focus on one point and maintain movement. I’ve graduated to following the ball with my eyes while meal prepping (hi, SmurfetteRD!!) Well, k fine, I’m actually forcing the issue. I’m dizzy and nauseous off and on, which is really cramping my style. 2 nights ago a door frame jumped out of nowhere, but I kept my wits about me. I clung to Trainer D all Friday. It’s R’s turn tomorrow. But you know what? Georgetown won. #hoyasaxa – and #istillbleedhoyablue #avmsurvivor #strokesurvivor ##lifeismysport #learninghowtolive #shreddedgrace