I’m celebrating 3 years of recovering at home on June 22. When we flew home I still didn’t understand what was happening. I just felt instinctively that it was good that I was going home (from OR to MD) but was deeply grieved that I was leaving the hospital in a wheelchair, not on my own feet.
The first Therapist I saw at RIO (3rd Hospital) in April was PT2. Hey, A, look – I can walk and stuff! I greeted him as he emerged from the staff room. I also saw an OT and a longsuffering RecreationalT who recalled me as “the piano player.” They had all been super nice to me although I was going through my “arms akimbo” stage. My attitude then was that this whole thing was a ridiculous misunderstanding that could be resolved quickly if everyone didn’t insist on proliferating it. I was much less verbal (thankfully for them) then, but I thought, since I’m stuck here I will need you to prove that A) you’re real, B) something really did happen to my brain, C) you are entertaining. Since this is my dream it is my right to be entertained. So chop chop. Daylight’s burnin’.
They weren’t very entertaining (at least not intentionally) but they were highly proficient – which is what I needed. Turns out that I was entertaining enough (also unintentionally) for all of us. Side note: This was when Mommy started following me around during Therapy and apologizing. No one really knows what my “end state” will be but the important thing to me is that I haven’t hit the ceiling yet.
PS. If you prefer something GF/flourless and vegan (but also delicious)…Flying Home Blondies
Baker Smurf reached into her handwritten archives and produced these blondies for me. The original version is likely based on some Googling she did (she is great at using the iPad for recipe research – yay for Mommy! Pride consumes me) but the source is unknown – sorry! These came out wonderfully gooey and delicious. I requested butterscotch (not brownie) bars bc butterscotch pudding was the first thing I swallowed, and added PB chips bc peanut butter toast was my final challenge before PEG (food tube) removal.
preheat the oven to 350; grease a 9×13 pan
- 2 sticks of butter
- 2 c dark brown sugar
- 2 large eggs
- generous splash of vanilla
- 2 c flour
- ~1 c peanut butter chips
Melt the butter and sugar together and let them cool a bit. Beat them together until they’re smooth. Stir in the eggs, vanilla, and then the flour. Fold in the chips. Bake for 25-28 minutes at 350.