Changing up the Antibiotics

Please pray Ernie responds SUPER DUPER WELL to his new antibiotics, which will be changed up tomorrow. The current course has been kinda hard on his body, so we pray the infection continues to GO AWAY under this new change. || This pic was taken exactly 9 yrs ago – 6.23.11 – my first day as an outpatient. I got my baby that Skins outfit. xoxoxo Ernie met us at the baggage claim with E in his arms the night before, K was flitting around in a pink Tinkerbell nightdress, and Ruthie drove me home in the middle of HORRIBLE construction traffic on 495 in the middle of the night. The next morning my sweet niece (then 5 yrs. old) helped me put on my shoes and started my home OT exercise regimen – no joke. ๐Ÿ’—๐Ÿ’—๐Ÿ’—๐Ÿคฃ๐Ÿคฃ

A Healing Environment

Ruth is an aggressive juicer. ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ sheโ€™s my juicing hero. Her knife skills are ๐Ÿ’ฏ. She stuffs ALL KINDS of produce in that machine. It routinely gets stuck. Unfazed, she fixes it, and proceeds until a giant quart jar of juice appears, and Ernie downs it in short order. I had the privilege of staying with them for several weeks over the past few years and have seen the lifestyle management efforts they have undertaken as a team and the positive impact on my brotherโ€™s health. Diet and exercise are crucial, but it is caregiving founded on Christ-driven love that fuels Recovery in the Tan Family. Giving and receiving care is difficult. There are so many things to keep track of. When I got out of the hospital Mommy used to make me pancakes every Friday just to make me smile. Daddy used to make me role-play my yearly disability interview (heโ€™s a lawyer and loves that kind of thing) – but no one ever called me ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ๐Ÿ˜‘๐Ÿ˜‘๐Ÿ˜‘. I think they understand now that this Disability thing is here to stay. Now as our situation has developed Iโ€™ve been trained to help physically in crisis, but take great joy in the everyday tasks of making tea, doing laundry, and telling Daddy jokes. It is these small routines – teatime, pancakes, a quart of fresh juice – that create stability and an environment of love and care in which we do our BEST healing. Ernie is getting stronger at home. So is Daddy. Please pray for their continued recovery and especially for Ruthie ๐Ÿ’— and Mommy ๐Ÿ’—. #shreddedgrace

๐ŸŒก๐Ÿ‘๐Ÿ’—

Thank you for praying ๐ŸŒก!! Ernieโ€™s fever broke at 1am and heโ€™s safe at home with his family. The Home Nurse has one more Teaching visit tomorrow and they (i.e. Ruthie ๐Ÿ’—) will know what to do. Please continue to pray for protection and healing and that Ernieโ€™s PICC does its job well. And Thank the Lord again that my brother is H O M E ๐Ÿ’—๐Ÿ™Œ๐Ÿ”ฅ.

Home

ERNIE is HOME, and we have so many reasons to smile. When things were headed relentlessly towards transplant territory I was nervous that my brother would not see his home again bc they recently sold their house and are closing soon. I went to work one day and never came home, and I prayed Ernie would be spared that grief. Turns out we have all been spared a LOT of grief and we are so glad for the respite. There have been many scenarios, though, in which my family has NOT been spared grief, but we are still able to give thanks in every circumstance knowing that even when fear and doubt assail we have an unwavering Advocate, and โ€œsurely He hath borne our griefs and carried our sorrows…” The fact that we have known both kinds of outcomes and Godโ€™s faithfulness in everything made me confident before I knew how Ernie’s situation would turn out, that he’d be okay – we’d all be okay no matter what. Yes, of course, it was daunting, but we were open to and asking for healing at every level, and after all – home is not a place, it’s a feeling. But I am thrilled that the two intersect presently and Ernie will be home with his wife and children and Mom and Dad Bj tonight. The home health nurse will visit this evening. THANK YOU for standing with us in prayer, and rejoicing with us, too.

The M Word

Ernieโ€™s blood is looking good and he is on track to be discharged tomorrow morning. There are still logistics to be prayed for in addition to continued healing, but ๐Ÿ’—please join us in thanking God for this miracle. ๐Ÿ’— Yeah, thatโ€™s RIGHT – I just invoked the M word. People used the M word when I lived in 2011. They started using it again in 2017 when they observed how I had been taught to move and the measure of strength God gave me. And Iโ€™m choosing this word now bc letโ€™s be real – a week ago we were steeling ourselves for major ๐Ÿง  and ๐Ÿ’— intervention. I do not use this word lightly – I do so with intense gratitude. ๐Ÿ’—๐Ÿ’—๐Ÿ’—

PICC โœ…

The X Ray showed that Ernieโ€™s PICC looks good!! YAY!! Heโ€™s been given some meds on the line, and started the anticoagulants, too. Please pray that his numbers look good so he can be discharged and go home, and the routine will be established for him to thrive under follow up home care ๐Ÿ’—๐Ÿ’—๐Ÿ’—. Thank you so much for your prayers. Goodnight!

PICC update – waiting for X Ray

Ernieโ€™s PICC is in – but they are going to verify that itโ€™s all good via chest X-ray.  Thanks for praying!!  Correction to last update:  they are starting anticoagulants today, but the PICC is for the antibiotics.  ๐Ÿ˜ฌ๐Ÿ’—.  Prior Update: Ernie is getting a PICC line right now – please pray (1) for zero complications as they insert the PICC.  This is an uncool process complicated by the fact that his ๐Ÿ’— is transposed so his arteries are confusing.  My brother is brave and very interesting. (2) successful start of anticoagulants today (3) Ernieโ€™s INR (blood clotting Metric)will be appropriate by Wed/ Thurs so he can be discharged and monitored at home. || THANK YOU ๐Ÿ’—๐Ÿ’—๐Ÿ’—

PICC line – please pray now

Ernie is getting a PICC line right now – please pray (1) for zero complications as they insert the PICC. This is an uncool process complicated by the fact that his ๐Ÿ’— is transposed so his arteries are confusing. My brother is brave and very interesting. (2) successful start of anticoagulants today (3) Ernieโ€™s INR (blood clotting Metric)will be appropriate by Wed/ Thurs so he can be discharged and monitored at home. || THANK YOU ๐Ÿ’—๐Ÿ’—๐Ÿ’—

The details….

Ernie is feeling well and they are starting to discuss discharging him. WOW. Reminder: this is a complete 180 from what they thought a week ago. This plus Daddy being home and doing well – ๐Ÿ˜ณ๐Ÿ˜ข๐Ÿ’—๐Ÿ’—๐Ÿ’—. I canโ€™t even. ๐Ÿ˜‘. โฌ…๏ธ That is my Happy Face. Sniff sniff. Please pray (1) Ernie is confirmed to be doing so well that he is discharged early this week. (2) Homebound Logistics: ERKEP is moving house in the midst of all this. Please pray for location and settling logistics for follow-up home care (3)โญ๏ธ 100% healing and strengthening ๐Ÿ”ฅ||my note: Ernie is at the 2-week mark. 2-wks of inpatient while lucid = INCREDIBLY WEARING. Mommy was like, you shouldโ€™ve seen your face when they told you your goal discharge date. (They told me at 3rd hospital theyโ€™d hold me for a month and I was like, ๐Ÿ˜‘, youโ€™re messing up my Agenda.) It was Ernie and Ruth who prepared Mommy Daddyโ€™s Empty Nest to receive me when I was FINALLY released from the Hospital. They are IMMENSELY CAPABLE, plus, Mom and Dad Bj are there!! But still, this is heavy lifting. But one of my dear aunts told my parents as they pondered how to transport me across the country: itโ€™s okay – the details are NOTHING to Him. ๐Ÿ’—