Praise: Daddyโ€™s GB tube โœ…


Everything went smoothly with Daddy!! The procedure was on time and efficient, and the people smiled ๐Ÿ˜Š which always helps. We will do this again in January. Now weโ€™re headed home to have more fun. Daddy informed me of the activity list. What he does not know is that weโ€™re doing squats and step ups later. ๐Ÿ˜‘ JK. He gets to rest today bc he had a procedure. We are SO GRATEFUL for your prayers. We were apprehensive but now we are all very pleased.|| ***please continue to pray for Daniel and MJ. ** Merci!! #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace #brainaneurysm #gallbladder

3 Prayer Reqs


3 Prayer Reqs: (1) DADDY gets his GB tube replaced Wednesday. Pls pray itโ€™s easy peasy. (2) DANIELโ€™s knee surgery, also Wednesday. Pls pray that itโ€™s effective, for pain relief, and rapid recovery. (3) MJ just had another very scary incident ๐Ÿ˜‘. This is her 3rd post TBI. ๐Ÿ˜ข๐Ÿ˜ข๐Ÿ˜ขPls pray for rest, healing, and good medical info. || Thank you so much!

Grappling with Life

These Bossy Smurf glasses come in red, too!! Remember how I said the Guys make me grapple w life? Trainer D just gave me a new cardio build up protocol that will address my little breathing issue that surfaced in 2017 and my stamina loss. Coach Randy insisted that I do a certain exercise that challenged my depth perception issues even though I fussed and gave him a pre-emptive โ€œchatโ€ about ๐Ÿ˜‘. But of course he had specific reasons for why I should do this. I had not verbalized my need to either one of them. They just continue to observe, plan, and vouch for my safety. Thanks, guys!! #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace 

Sensory Adjustment Period ๐Ÿ˜‘

My Cousin L and Uncle CC came to visit a couple weeks ago. L brought these lovely GF cookies from Boston. Happy Times! Praise: I could tell Daddy was making a real effort to pick up his legs (esp the left) while we practiced walking. It was great – I noticed BEFORE he even told me what he was doing, which means it makes a real difference. Goal = zero circumduction gait, no dragging, etc. still working on it myself. Prayer Req: (1) Improvement in Daddy’s mobility, that we will be faithful in our exercises (2) Daddy’s GB tube replacement Nov 6 (3) I saw my lovely AuD who confirmed additional L ear hearing loss (just a little, but within the time frame of a couple months, not great), and tweaked my Hearing Aid settings. Please pray for this Sensory Adjustment Period and that I will be able to build stamina. Hearing loss is just one factor throwing me off balance, and I’ve lost a ton of stamina since a year ago. This type of hearing loss is permanent but it’s not super high priority for me, but given the timeline (onset Nov 18, More loss Jul 19, More loss Sept/Oct 19) I will go see my docs just to confirm that I’m doing everything I should be. In the meantime, I’m sticking with the Guys who continue to make me grapple with life despite ever changing conditions. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace #brainaneurysm

Sensory Adjustment Period ๐Ÿ˜‘


My Cousin L and Uncle CC came to visit a couple weeks ago. L brought these lovely GF cookies from Boston. Happy Times! Praise: I could tell Daddy was making a real effort to pick up his legs (esp the left) while we practiced walking. It was great – I noticed BEFORE he even told me what he was doing, which means it makes a real difference. Goal = zero circumduction gait, no dragging, etc. still working on it myself. Prayer Req: (1) Improvement in Daddy’s mobility, that we will be faithful in our exercises (2) Daddy’s GB tube replacement Nov 6 (3) I saw my lovely AuD who confirmed additional L ear hearing loss (just a little, but within the time frame of a couple months, not great), and tweaked my Hearing Aid settings. Please pray for this Sensory Adjustment Period and that I will be able to build stamina. Hearing loss is just one factor throwing me off balance, and I’ve lost a ton of stamina since a year ago. This type of hearing loss is permanent but it’s not super high priority for me, but given the timeline (onset Nov 18, More loss Jul 19, More loss Sept/Oct 19) I will go see my docs just to confirm that I’m doing everything I should be. In the meantime, I’m sticking with the Guys who continue to make me grapple with life despite ever changing conditions. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace #brainaneurysm 

๐Ÿ and Gravity Confuse Me


See my Daddy walking? GREAT JOB, Daddy ๐Ÿ™Œ๐Ÿ”ฅ๐Ÿคช !! I was not walking with him bc Iโ€™m having a little trouble visually with all the ๐Ÿ on the ground. But we still managed to catch the last few minutes of daylight. Prayers appreciated for myself, please, as Iโ€™m experiencing more sensory distress lately. ๐Ÿ˜‘ For the first time since 2013 at Planet Rehab with my beloved M37 Iโ€™ve started tipping over while standing. I was between sets w David so I wasnโ€™t paying attention to my stance. And the next week I fell off the end of the ladder, which is on the floor ๐Ÿ˜‘ and to add insult to injury I was holding Randyโ€™s hand AND DLee @fyzicalgermantown was watching. ๐Ÿ˜‘๐Ÿ˜‘๐Ÿ˜‘๐Ÿ˜‘ Randy was like, thatโ€™s the first time youโ€™ve ever done that. ๐Ÿ˜ณ I posit that it was DLeeโ€™s fault bc he was distracting me. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Neuro Surgeon Check Up


Neuro Surgeon Check up: Standard procedure after placing the kind of stent that Daddy got in his R carotid is to do another angiogram in 6 mo. to check it. But Daddyโ€™s blood flow landscape is so complicated, Dr. C will ask for new scans in a couple months and will decide in January if the combination of these images can verify that the stent is doing its job. If not, she will have to go back in ๐Ÿ˜‘. *Please pray that Daddy will do well (including no Gall Bladder episodes), and that the stent will function correctly and the images will suffice. * Monday and Tuesday are my busiest days – I get to see all my peeps!!! But for the rest of the week I devote myself to our Recovery Enrichment Curriculum ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ Iโ€™ve totally roped D and R into helping me plan ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ. * Please also pray for Matt @hopeforhankey as he gets his baclofen pump replaced today. It will take 6 wks to recover from this surgery.* #avmsurvivor #strokesurvivor #brainaneurysm #lifeismysport #learninghowtolive #shreddedgrace 

This Week at Chez Tan


We got Daddy a new scan yesterday for his checkup with Dr. C (Neuro Surgeon) next week. We three make a great team. We spread cheer and jollification throughout the clinic yesterday while we visited the imaging department ๐Ÿคฃ๐Ÿคฃ๐Ÿคฃ. We have also been busy with other things. Bossy Smurf is on high alert and as a disabled person Iโ€™m willing to pay for tech services and upgrades that allow me to accomplish things paperlessly. Daddy was discharged last week from home PT and will be discharged from home OT today. We will be devoting ourselves to home exercise, specifically to the building blocks that will improve his mobility. Iโ€™ve got my thinking cap on and will verify with my people. It takes a village. Good thing God gave me one. ๐Ÿคฃ๐Ÿคฃ๐Ÿ™Œ๐Ÿ”ฅ. **Please pray for a good check up next week and the Lordโ€™s help to exercise diligently. And please remember my AVM friend, X, who is getting some surgical maintenance done next week.*** #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

Vascular Surgeon โœ…


Just saw the Vascular Surgeon. The 2 latest ultrasounds show that Daddy is stable. YAY!! Now we can concentrate on our quiet home routine – we get to wait a year before coming back. However, we do still have a check up with the Neuro Surgeon next month, and Gall Bladder monitoring to attend to. But Iโ€™m so pleased that todayโ€™s visit was uneventful. ๐Ÿ™Œ๐Ÿ’—

Define โ€œBumpโ€ย 

My last post referenced “bumps in the road.” Injuries happen – it behooves me to learn to move safely, but sometimes you can’t help it. But to be clear: My hip tore bc of Real Life, NOT gym life – what I do in the gym both mitigates the risk of injury and heals me up when those inevitable injuries happen. My L hip originally tore in 2016 on a trip to the playground with my babies involving uneven/rough terrain. Randy rehabbed me so I broke up with my Ortho Surgeon via email bc I am supremely uninterested in Surgical Intervention. I liked my surgeon, though – he explained that a ton of people my age might have a labral tear, but they can hack it, whereas my body/joints do not function like regular folks’ do. He also pointed out the difference bw pain and functionality. I got a lot better but was diagnosed with the tears again in March (it got aggravated bc of my balance disruption concurrent with hearing loss resulting in hilarious but harmful evasive lateral movements). Lately my hip and legs have been acting up. My Neuro and Coach R have looked at me and pointed out that I cannot ignore this forever. After R did soft tissue work on the lower legs Mon we spoke frankly and R said the hip’s already torn – I’m not necessarily going to make it worse, it’s just that my activities might make me more aware of the pain sometimes. My real beef was that I lost a ton of functionality within the last 2 weeks. So he said that if I fail to continue strength training with him and Trainer D, I will definitely deteriorate. Cautionary Tales with Coach R ๐Ÿคฃ๐Ÿ˜‘! This was music to Sister Maria’s ears and he made me work SO HARD yesterday. But you know what? Even though I had Jello legs after the workout I WAS NOT LIMPING like I was when I walked into the gym. And 24 hours later I’m STILL not limping. Confidence through strength training. FASCINATING. Thanks, David and Randy! I know I’m bossy and fuss with you both, but I actually DO listen to what you say. And I’m so glad I feel better bc I need the energy to hang out with Mommy Daddy – we have a couple docs (not mine) to see this week! Thank you for praying for us. xoxo