THIS is what #hypervigilance looks like. When I was not in the bed I was sitting bolt upright, eyes fastened on the door. 😳😑😳. But after the first 15 hours I relaxed a bit. And I could not brush my hair bc of the wires. See my white stripe from the drainage catheter? It’s grown out well. THANK YOU for your prayers and kind words. My doc and the Sleep Ctr made sure I got GREAT techs. NOTE: *always* ask for accommodation. Say what you need. My techs “got it.” And although I was obsessively staring at the door most of the time I did not scream once. I’ve always had a high startle response, but lately there has been blood curdling shrieking at a level beyond the usual screaming. …. Ok, I did scream once, but it was in my dream, so Im not counting it… As I’ve lost hearing Ive become more sensitive to the vibration of the walls, floor, door – so as to better ascertain if anyone is approaching. 😑 But my MHP’s prepared me so well to anticipate and tolerate discomfort. Every time the Techs woke me up I was ready. THIS is a huge praise. Although I’m not sure of the impact of my PTSD etc on my sleep data. I already told my sleep doc, this might be the most boring test ever bc all you’re gonna see is me like, 😳. But I DID fall asleep. And I thank you again for your kindness. Now I’m getting ready for my Swallow Study!! #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace
Learning How... 