See that crumpled up piece of paper? Those are the post-procedure instructions I was supposed to be paying attention to, but I just stuffed them into my purse and found them several days later. My bad. I went to Hopkins for a #Dysautonomia test – a skin biopsy for neuropathy. I have all the symptoms of Dysautonomia, but I started instinctively doing all the lifestyle management stuff last year, so the testing is for info only and will not impact treatment. But my symptoms could also be brain injury or something else, which is why I have to do formal testing (I’m still scheduling). THANK YOU to my friends who took excellent care of me bc I was super skittish and they made everything easy and fun 💗. My Nurse Practitioner could not have been nicer or more helpful. I disclosed that I’m 1/2+ #deaf and #HoH and have #PTSD etc, and how she could help me. She immediately raised her voice, maintained excellent eye contact, kept on explaining what was going to happen, and reassured me I could say, STOP, at any time. 🙌🤟🥺. It was hard in a flashback sort of way, bc I had to lie on my side on a table and that’s a problematic memory for me. 😑 fyi, all my appendages and the L side of my face have been tingly/numb since my AVM. I thought lotion would solve the strange sensation. My skincare and bathing routines had been cast aside for MONTHS. Clearly, I thought, getting back on track with applying lotion on my arms and legs would solve this problem. 😑 I was disappointed to find out I was mistaken. But it was a low priority symptom and my lotion smelled nice, so I just moved on. Right now I’ve got 3 tiny holes in my leg. They’d be nothing to an able bodied person, but I’m having a really hard time. The one near the hip gets especially sore as the day wears on and triggers other pain. This morning they were all bothering me, plus my breathing was very uncomfortable. So I took meds, propped up, and am sleeping more. Please pray I will bounce back asap. Although I haven’t been feeling very bouncy for a couple years. These yellow orchids from my Aunt and Uncle, however, are helping 💗🙏💗.
Learning How... 