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← Daddy’s Angiogram

Daddy Update

Posted on May 9, 2019 by shreddedgrace

The doctors agreed amongst themselves to cancel the CT bc Daddy is doing well and his pulse is strong. Please pray Daddy continues to do well and for good rest for him and Mommy tonight. (She’s staying at the hospital). #strokesurvivor #brainaneurysm #lifeismysport #learninghowtolive #shreddedgrace

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← Daddy’s Angiogram

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Last week I left the house for the first time for some testing. My clinic is taking all sorts of precautions and this stuff had to be deemed “necessary” and I had to pass screening before being let in the locked front doors. I’m grateful for the medical pro’s who keep treating in the midst of all this. Before lockdown I had 3 Therapy Rx: 1) Occupational 2) Vestibular 3) Hip Rehab. Although med environments are starting to open up I’m not eager to pursue these Therapies - except the Hip thing. Coach R is still in charge of that (per my ortho) - but not yet. Being home and not at the doc ALL THE TIME like I was prior to seclusion has allowed me to rest and adjust to these new physical parameters (AGAIN), although it’s still a work in progress and I miss the BPNA with Coach “Let’s Practice good habits” R and Sister “you need Tabata” Maria . Daddy has not been scheduled for GB surgery yet, but has blood and imaging on the horizon in the next month. Mm hmm. 😑 I’m not eager to go anywhere bc I want to minimize my own exposure especially bc I live with Mommy Daddy. Although, it could be argued that I have an underlying health condition and should be careful on my own account, but whatever. 🤣🤣😑. The great thing is, though, that I’m continuing to learn even though I’m not an OutPatient. My people have taught me enough self awareness that this time is very useful as I observe my own performance in daily household tasks like laundry and making tea. But the break from my Medical Rounds has also driven home the seriousness of my situation. I'm busy prioritizing the skills needed to preserve/build my quality of life and I'm realizing just how many things I dismissed as unimportant after I woke up. I might have dismissed them, but God never did - He just shielded me from the full realization of it bc it was too heavy for me to carry. FYI, it's STILL too heavy. Which is why it's a good thing He carries it for me. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

I’ve resorted to wearing sunglasses and bringing a pile of chocolate to my appointments. Yesterday - my doc: You look like a movie star 😎. Me: I’m pretending you’re not here 😑. 🤣🤣🤣🤣 JK. My shenanigans make them laugh, which is good, bc healthcare professionals could all use a laugh right now. ***Praying for their protection and efficacy in their work, and for healing for those who must be treated in the hospital, not digitally. 💗💗💗*** Daddy had a phone appointment w his Gall Bladder surgeon and is now on the waiting list for GB removal surgery. Please pray for the Lord’s overruling in the timing of this and Daddy’s stability in the meantime. Also, he might have to go in for maintenance, and I will have to go to my doc for some testing in May. Please pray for protection for Mommy Daddy and me. My preference is for no one to leave this house 😑 but we will do what we must. Don’t worry, we have protective gear, however, after the CDC suggested mask-wearing my plan was simply to stay home bc I have major mask and respiratory baggage. I never admitted that I remember as much of the life-support/ventilator process as I do. My concerns have surfaced in training like this: Me: I am NEVER doing a vO2 test, David. EVER. 😑|| Randy: I don’t like the way you’re breathing. Me: Immaterial. WAS MY PERFORMANCE ACCEPTABLE TO YOU?!?!...[later] Sorry I was mean again. #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

And the Word became flesh and dwelt among us...... To take pains to communicate in a way others will understand is a small way to emulate God's plan for humanity. Psalm 121:1 - this is just a token for this year's Sunday School memory challenge. I got locked out of my online #cuedspeech course so I had to make some stuff up. ROTFLOL. I'm cueing in slo mo with my voice off bc I'm super self conscious....but I'm learning. PS. At 0:41 my thumb should NOT be showing. It should be 1s when I say, “LorD” #avmsurvivor #strokesurvivor #lifeismysport #learninghowtolive #shreddedgrace

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